Nikita Jade Disability Fund

Raising money for a special girl

Donate today to help pay for Nikita's specialist equipment

Nikita is 16 years old and has Atypical Spastic Quadriplegia Cerebral Palsy, Microcephaly, Global Developmental Delay and Cortical Visual Inpairment. Nikita is unable to walk, talk or communicate clearly.

The Nikita Jade Disability Fund (NJDF) was set up to help raise money for Nikita as she needs specialist equipment and various treatments. The local authorities are unable to fund everything for all of the disabled children in the area especially for those over 5 years old. So, its down to the NJDF to help pay for Nikita's treatment, equipment and communication aids.

 So far with your generous donations, the money raised has been able to fund a sensory room, hydrotherapy pool, a wheelchair, a specialist bed and various communication aids for Nikita. 

Most importantly the fund has continued to be able to pay for Nikita to attend intensive physiotherapy sessions at the Bobath Centre in East Finchley, London.

Nikita has had surgery on her legs, (August 2012) she had her hamstrings lengthened and has botox regularly in her legs to help work the muscles. However, the surgery hasn't been as successful as we all hoped and the need for Bobath is greater than before.

2014 was the ten year anniversary for the Nikita and the fund. In February we had a 1940s Valentine Dance. It was a great success however, there are no plans as of yet to hold another just yet. Sadly there was an admin mix-up at the council and we were unable to attend our annual favourite, Rushden's Party in the Park.

Early Summer, Dan Freeman and Team 24 at Rushden's Prince's Trust raised money for Nikita with a sponsored triathlon!
In August, once again Marc Atkins, Mike David and the rest of the Sat in a Field team raised an enormous amount of money for their chosen charities, one of which was our very own Nikita!

Nikita had surgery on her legs a couple a years back to release her hamstrings that were very tight and caused her scoliosis to worsen. The surgery was successful but not to level desired. 

May 2018, Nikita has had her adductors released to prevent further hip displacement. Nikita will have spent 8 weeks in a cast from her waist to her knees with a bar to prevent her from moving. 

The Bobath Centre, East Finchley.

The photo above is Nikita and her dad at the Bobath Centre in 2012. 
Because of Nikita's disabilities she is unable to sit with the correct posture, which is adding to her list of problems especially to her spine and lungs. In the photo they are working on how Nikita needs to be sat up, feet down and learning to reach out for toys.

Website, social media, flyers and other artwork is all designed and maintained by Kelly Dunkley - Nikita's sister.